Disability Data Collection in Community-based Rehabilitation
Collaborating with AIFO (Bologna), IT
Dr Sunil Deepak has vast experience in research, training, monitoring and evaluation of programmes dealing with CBR, leprosy and primary health care in Africa, Asia and South America. He collaborates regularly with the Disability and Rehabilitation unit of World Health Organisation (WHO/DAR) and was President of the International Federation ILEP.
Francesca Ortali is the head of Project Office of AIFO – Italian Association Amici di Raoul Follereau – Italian NGO. She is founding member of Italian Network on Disability and Development – RIDS. Her main focus and expertise area is - supporting strategies to enhance the empowering process at community level to include people with disabilities and vulnerable groups.
Rehabilitation Assistant Training Programme, Ministry of Health, GY
About Geraldine Mason
Ms. Geraldine Maison Halls is a professional physiotherapist with a Masters degree in Public Health. She is one of the pioneers of CBR in Guyana and has worked with WHO, PAHO/WHO, and a number of international NGOs in promoting strategies to stimulate community based initiatives in rehabilitation. She is also an associate lecturer in Rehabilitation at the University of Guyana.
Ms. Tulgamaa Damdinsuren has a Masters degree in Social Science. She is AIFO Country Coordinator in Mongolia. She is also a member of the National Children’s Council chaired by the Prime Minister of Mongolia.
Mr. Enhbuyant Lhagvajav (Masters in Social Science), works in AIFO Country Coordination office in Mongolia and is the head of “Tegsh Niigem”, a local NGO, which contributes to implementing CBR in Mongolia. He is a member of the Policy Council of Persons with Disabilities chaired by Vice-Minister of Ministry of Labour and Social Protection of Mongolia.
Steven Msowoya holds a Master’s Degree in Special Needs Education from the University of Waikato, New Zealand. He has over 20 years of working experience in the area of empowerment of persons with disabilities. Currently, Steven serves as a Senior Technical Advisor to Government of Malawi on issues of disability mainstreaming.
Malek Qutteina, MD. MPH, is a medical doctor and public health/behaviour change communication specialist. He was involved in the development of CBR programs in Palestine since early 1990s, and has wide experience in disability and rehabilitation in the region.
Dr. Jayanth Kumar Y.B is a person with visual impairment and PhD holder in sociology. He is a disability activist, trainer and a researcher working in the field of disability and rehabilitation sector for the past 25 years. He is currently serves as Head of Programme for AMICI India office in Bangalore.
Today there are Community-based Rehabilitation (CBR) programmes in a large number of countries. In many countries, the CBR approach is a part of the national rehabilitation services. However, there is a lack of reliable data about persons with disabilities who benefit from CBR and the kind of benefits they receive.
This article reviews the disability data collection systems and presents some case studies to understand the influence of operational factors on data collection in the CBR programmes.
The review shows that most CBR programmes use a variable number of broad functional categories to collect information about persons with disabilities, combined occasionally with more specific diagnostic categories. This categorisation is influenced by local contexts and operational factors, including the limitations of human and material resources available for its implementation, making it difficult to have comparable CBR data.
Therefore, any strategies to strengthen the data collection in CBR programmes must take these operational factors into account.