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Original Research Articles

Developing the Content of a New Quality of Life Questionnaire for Children with Hearing Loss

Authors:

Lavanya J. Raj ,

JANANAM, Hyderabad, Andhra Pradesh, IN
About Lavanya J.

The author is a PhD candidate at the Post Graduate and Research Department of Rehabilitation Science and Special Education. She is a consultant in rehabilitation and special education and has established Jananam, a centre for skill development for children with disabilities at Hyderabad, India

 
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P Swarnakumari,

PG & Research Department of Rehabilitation Science, Holy Cross College, Tiruchirapalli, Tamil Nadu, IN
About P

The author is an Associate Professor at Research and Post graduate Department of Rehabilitation Science and Special Education. She has specialised in mental retardation and multiple disabilities and  teaches undergraduate and postgraduate students, and has guided many research projects including doctoral thesis in  multiple disciplines of rehabilitation science.

 

 

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Turin Martina

PG & Research Department of Rehabilitation Science, Holy Cross College, Tiruchirapalli, Tamil Nadu, IN
About Turin

The author is an Assistant Professor at Post graduate and Research Department of Rehabilitation Science and Special Education. She has specialised in hearing impairment and learning disabilities and  teaches undergraduate and postgraduate students, and has guided many research projects including doctoral thesis in  multiple disciplines of rehabilitation science.

 
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Abstract

Habilitation and rehabilitation call for a paradigm shift from the traditional intervention programmes which focus on physical functioning to programmes that include aspects of physical, psychological and social wellbeing.

Purpose: To develop a quality of life instrument, using focus group discussions to assess the outcomes of interventions for school-going children with hearing loss.

Methods: Separate focus group discussions were held with children with hearing loss between 8 and 18 years of age, special educators  and mothers. Focus group discussions were conducted separately for boys and girls. Each focus group had 8–10 participants. In-depth interviews were conducted with the heads of institutions  and rehabilitation professionals. Fathers  had to complete self-administered questionnaires. The focus group discussions were guided by topics and probes drawn from literature reviews, and were audio recorded, transcribed and analysed.

Results: Around 421 problem statements were classified under 7 themes: Educational implications; Social integration; Psycho-social wellbeing; Family relationships; Speech, language and communication; Leisure and recreation; and General functioning. Education and career aspirations were considered to be most important. The problem statements revealed that the primary focus of training was on improving academics. Integration and feeling comfortable with social situations were cited as limitations; as also, the preference for friendship with people of similar abilities. For the majority of children, leisure and recreation was limited to watching television. Parents and siblings were considered vital to their progress and achievements.

Conclusions: Multidimensional and varied perspectives of different stakeholders, especially family members, are necessary for a comprehensive analysis of the impact of hearing loss on the quality of life of school-going children.
How to Cite: Raj, L.J., Swarnakumari, P. and Martina, T., 2014. Developing the Content of a New Quality of Life Questionnaire for Children with Hearing Loss. Disability, CBR & Inclusive Development, 25(2), pp.76–89. DOI: http://doi.org/10.5463/dcid.v25i2.295
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Published on 17 Aug 2014.

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