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Original Research Articles

Comprehensive Management of People with Cerebral Palsy: An Indian Perspective

Authors:

Kavitha Raja ,

JSS College of Physiotherapy, IN
About Kavitha
Dr. Kavitha Raja is a Physiotherapist by training and has over 35 years of clinical experience. She has a special interest in the rehabilitation of people with cerebral palsy and spinal cord injury survivors. She has a strong academic background and is currently Professor and Principal, JSS College of Physiotherapy & Deputy Director, (Therapy Services) JSS PMR Centre
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Saumen Gupta,

Sikkim Manipal University, IN
About Saumen
Dr. Saumen Gupta completed his post-graduation in Physiotherapy with a CBR specialty. He has a special interest in pediatric disabilities and is currently an Associate Professor in Physiotherapy at Sikkim Manipal College of Physiotherapy.
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Priyanka Shirsath

Independent physiotherapy practitioner, IN
About Priyanka
Priyanka Shirsath is a Physiotherapist with a post-graduate degree in CBR. She is interested in the rehabilitation of people with disabilities, especially on issues related to ergonomics at the workplace and access issues.  She is currently an independent practitioner.
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Abstract

Purpose: Guidelines for the management of people with cerebral palsy are available from many countries. However, these cannot be adopted in their entirety in other countries due to socio-cultural differences and varied health systems. This study set out to develop guidelines for the management of people with cerebral palsy, throughout their lifetime, in India.

Methods: A mixed methodology with a multiphasic approach was used. The first phase involved an extensive literature review to compile current evidence about the management of people with cerebral palsy. In the second phase, a questionnaire was given to stakeholders in order to explore current practices. The third phase consisted of consensus-building meetings with stakeholders, to develop resolutions that incorporate global best-practice recommendations for India.

Results: Responses from the second phase were compiled and categorised based on discipline.  Proceedings of the consensus meetings were transcribed verbatim and best evidence was synthesised to understand current global practice guidelines. Resolutions were formed within the framework of the results of phases I and II. These were ratified by experts and then formalised.

Conclusion: Sixty-four resolutions were formed, detailing a framework for multidisciplinary management of persons with cerebral palsy throughout their lifetime. A card with guidelines was developed to document all aspects of rehabilitation, development and care. However, the utilisation and application of these guidelines have not been explored as yet.

How to Cite: Raja, K., Gupta, S. and Shirsath, P., 2021. Comprehensive Management of People with Cerebral Palsy: An Indian Perspective. Disability, CBR & Inclusive Development, 32(1), pp.101–129. DOI: http://doi.org/10.47985/dcidj.415
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Published on 06 May 2021.

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