Children with Disability in Nepal: New Hope Through CBR?

Tanja Ingeborg Mol, Wim Van Brakel, Merel Schreurs

Abstract


Purpose: This study assesses the impact of a community-based rehabilitation (CBR) programme on the quality of life (QoL) of children with disability and their families.

Methods: A qualitative approach was applied, using two techniques - a ranking line and semi-structured interviews. Nineteen children (ranging from 4 –18 years of age) were interviewed in their homes located in three villages - Chapakhori, Bokraha and Madesha - in Nepal.

Results: Children with disability and their families ranked physical health, psychological health, empowerment and level of independence as the most important factors for their QoL. Of the 19 children, 13 had experienced positive changes in their life and 1 child reported a negative change. The positive changes related mainly to their physical health and functioning. The impact of these changes was felt in the ‘social’, ‘level of independence’ and ‘empowerment’ outcome categories. The children mentioned that they had more friends, experienced less stigma, could go to school and were more hopeful about the future.

Conclusions: This CBR programme has brought about changes in the QoL of all children with disability and their families. The majority of them reported a positive impact.

Keywords


Quality of life; children with a disability; impact

Full Text:

PDF

References


Albert B (2004). Enabling disabled people to reduce poverty. Disability KaR Knowledge and Research; 48 (8): 977-988.

Boyce W, Malakar S, Millman R, Bhattarai K (1999). Physically disabled children in Nepal: A follow-up study. Asia Pacific Disability Rehabilitation Journal; 10 (1): 20-26.

Brouwers C, Brakel W, Cornielje H (2011). Quality of life, perceived stigma, activity and participation of people with leprosy-related disabilities in South-East Nepal. Disability, CBR & Inclusive Development; 22 (1): 16-34.

Central Bureau of Statistics (2011). National population and housing census 2011. Available from: http://unstats.un.org/unsd/demographic/sources/census/2010_PHC/Nepal/Nepal-Census-2011-Vol1.pdf [Accessed on 3 September 2013]

Cutler DM, Lleras-Muney A (2010). Understanding differences in health behaviour by education. Journal of Health Economics; 29 (1): 1-28. http://dx.doi.org/10.1016/j.jhealeco.2009.10.003 PMid:19963292 PMCid:PMC2824018

Devlieger PJ (2005). Generating a cultural model of disability. Leuven: University of Leuven & University of Illinois.

Eide AH (2006). Impact of community-based rehabilitation programmes: The case of Palestine. Journal of Disability Research; 8 (4): 199-210.

Fayers P, Machin D (2007). Quality of life. England: John Wiley & Sons. http://dx.doi.org/10.1002/9780470024522 PMCid:PMC2234400

Guyatt GH, Feeny DH, Patrick DL (1993). Measuring health-related quality of life. Annals of Internal Medicine; 118: 622-629. http://dx.doi.org/10.7326/0003-4819-118-8-199304150-00009 PMid:8452328

Hartman JM, Forsen JW, Wallace MS, Neely JG (2002). Tutorials in clinical research: Part IV: Recognising and controlling bias. Laryngoscope; 112: 23-31. http://dx.doi.org/10.1097/00005537-200201000-00005 PMid:11802034

International Alliance (2006). Tools together now! 100 participatory tools to mobilise communities for HIV / AIDS. www.aidsalliance.org. [Accessed on 20 February 2012]

Japan International Cooperation Agency (JICA) (2002). Country profile on disability KINGDOM OF NEPAL. Planning and Evaluation Department. Available from: http://siteresources.worldbank.org/DISABILITY/Resources/Regions/South%20Asia/JICA_Nepal.1.pdf [Accessed on 20 February 2012]

Keith F (2005). Introduction to social research: Quantitative and qualitative approaches. London: SAGE productions.

Lansdown G (2003). Disabled children in Nepal. International Disability News and Views; 21: 11-12.

Lintern TC, Beaumont JG, Kenealy PM, Murrell RC (2001). Quality of Life (QoL) in severely disabled multiple sclerosis patients: Comparison of three QoL measures using multi-dimensional scaling. Quality of Life Research; 10: 371-378. http://dx.doi.org/10.1023/A:1012219504134 PMid:11763249

Lundgren-Lindquist B, Nordholm LA (1996). The impact of community-based rehabilitation as perceived by disabled people in a village in Botswana. Disability and Rehabilitation; 18: 329-334. http://dx.doi.org/10.3109/09638289609165890 PMid:8799672

Murphy B, Herrman H, Hawthorne G, Pinzone T, Evert H (2000). The World Health Organisation Quality of Life (WHOQOL) study. A Journal Of Bible And Theology; 22: 7-41.

Orley J (1993). Study protocol for the World Health Organisation project to develop a quality of life assessment instrument (WHOQOL). Quality of Life Research; 2: 153-159. http://dx.doi.org/10.1007/BF00435734

Panthi MR (2004). The disability situation in Nepal. International Disability News and Views; 24: 6-8.

Powell BA, Mercer SW, Harte C (2002) Measuring the impact of rehabilitation services on the quality of life of disabled people in Cambodia. Disasters; 26 (2): 175-191. http://dx.doi.org/10.1111/1467-7717.00199. PMid:12096849

Rossi P, Freeman HE, Lipsey MW (1999). Evaluation. A systematic approach. Sixth edition London: Sage Publications. http://dx.doi.org/10.1177/0193841X9902300601

Sakai H, Yufune S, Ono K, Rai SK (2009). Study on health-related quality of life perception among Nepalese. Health; 11 (3): 158-163.

Saxena S, Chandiramani K, Bhargava R (1998). WHOQOL-Hindi: A questionnaire for assessing quality of life in healthcare settings in India. World Health; 11 (4): 160-165.

Schalock RL (2001). Outcome-based evaluation. Second edition. New York: Kluwer Academic/Plenum Publishers. PMid:11730650

Sica GT (2006). Bias in research studies. Radiology; 238: 780-789. http://dx.doi.org/10.1148/radiol.2383041109. PMid:16505391

Thapa N (2009). Country profile of excluded groups in Nepal. Available from: http://cop.mdgasiapacific.org/files/cop/7/Nepal.pdf [Accessed on 12 February 2013]

The Department for International Development (2000). Disability, poverty and development. Available from: http://www.handicap-international.fr/bibliographie-handicap/4PolitiqueHandicap/hand_pauvrete/DFID_disability.pdf [Accessed on 13 February 2013]

Thomas DR (2006). A general inductive approach for analysing qualitative evaluation data. American Journal of Evaluation; 27: 237-246. http://dx.doi.org/10.1177/1098214005283748

Thomas M, Wirz S (2002). Evaluation of community-based rehabilitation programmes: A search for appropriate indicators. International Journal of Rehabilitation Research; 25 (3): 163-171. http://dx.doi.org/10.1097/00004356-200209000-00001. PMid:12352169

Velema JP, Cornielje H (2010). Developmental articles backbone principles of the CBR guidelines and their application in the field of leprosy. Asia Pacific Disability Rehabilitation Journal; 21 (1): 26-42.

Verschuren P, Doorewaard H (2010). Designing a research project. Second edition. The Hague: Eleven International Publishing.

Wood L, Cullen R, Smith E, Nicholls S, Addington-hall J, Kalra L (2001). Who should measure quality of life? British medical Journal; 322: 1417-1420. http://dx.doi.org/10.1136/bmj.322.7299.1417

World Health Organisation (1997). WHOQOL measuring quality of life. Available from: http://www.who.int/mental_health/evidence/who_qol_user_manual_98.pdf [Accessed on 12 February 2012]

World Health Organisation (2010). Health component CBR Guidelines. Available from: http://whqlibdoc.who.int/publications/2010/9789241548052_health_eng.pdf [Accessed on 20 February 2012]

World Health Organisation (2011). World report on disability. Geneva, WHO and The World Bank. Available from: http://whqlibdoc.who.int/publications/2011/9789240685215_eng.pdf [Accessed on 13 February 2012]

Yadav S (2010). Perceived social support, hope, and quality of life of persons living with HIV / AIDS: A case study from Nepal. Quality of Life Research; 19: 157-166. http://dx.doi.org/10.1007/s11136-009-9574-z. PMid:20047029

Zwieten M, Willems D (2004). Waardering van kwalitatief onderzoek. Huisarts & Wetenschap; 47: 631-635. http://dx.doi.org/10.1007/BF03083653




DOI: http://dx.doi.org/10.5463/dcid.v1i1.299

Refbacks

  • There are currently no refbacks.




Copyright (c) 2015 Tanja Ingeborg Mol, Wim Van Brakel, Merel Schreurs

Creative Commons License
This work is licensed under a Creative Commons Attribution-NonCommercial-NoDerivatives 4.0 International License.

Supported by:

netherlandsleprosyrelief_logo_rgb_-_new_logo_2014_120CBMlightfortheworld_logo_rgb_-_new_logo_2014_120

© Disability, CBR & Inclusive Development